Ask me and I will tell you remarkable secrets you do not know about things to come. Jeremiah 33:3 NLT
Tuesday, December 30, 2008
Wednesday, December 24, 2008
Thursday, December 18, 2008
Saturday, December 13, 2008
Friday, December 12, 2008
Friday, December 5, 2008
I had a lady ask me yesterday if I really believed Luke would walk again. It got me thinking...how could I not. When he was first hurt, we prayed he would survive...prayer answered, then we prayed he would be able to breathe on his own...prayer answered, then when a nurse told us she thought he may not be able to see or hear, I prayed he would at least be able to do one or the other (not good to be greedy right?)...prayer answered in a mighty way (she was wrong!,) then we prayed that he would wake up from his coma...prayer answered (I will never forget that day and his first cries in 4 months!,) then we prayed he would show some sort of purposeful movement...prayer answered, then when he started eating little tastes of baby food we prayed he would one day be able to eat by mouth...prayer answered, then we prayed he would start following commands...prayer answered, then we prayed he would be able to hold his head up without support...prayer answered, then we prayed he would be able to do some "normal" kid things...prayer answered...I could go on and on and on. So now, we pray that one day he will be walking and talking, and we wait for this prayer too to be answered. Believe!
Wednesday, November 26, 2008
I think when you have been thru what we have been thru over the last year and half, giving thanks takes on a whole new meaning. We certainly have SO much to be thankful for this Thanksgiving! First and foremost, I am thankful to God, who has never left our side this entire journey and we know He never will. He has used an eight year old boy named Luke, who we are proud to call our son, to show us and countless others that miracles still exist today if only you believe. I am also thankful for Luke, who is our hero in every sense of the word. He has survived being given a less than 5% chance, progressed way more than many doctors thought he ever would, taught us about courage, perseverance, and hard work. We are so thankful for the fighting spirit he has been blessed with, and we know God has great plans for him! I am thankful for Lynsey, who has never missed a beat when it comes to her brother. It warms my heart each night when she crawls into bed to lay by him or grabs his arm to arm wrestle. I am thankful for Mike, who loves his Wing man so much, and who does SO much for Luke. I can not wait until the day they can go hunting and fishing again. I am so thankful for all of our family and friends who help us out so much! Without all of you, this journey would be so much harder and so much lonelier...thanks for being with us for the long haul. I hope all of you have a great Thanksgiving day. I hope that you, too, will look around and see that no matter how big of a financial crisis America may be in now, or how bad life seems to be, there is ALWAYS, ALWAYS something to be thankful for. May God Bless you all this holiday season. Happy Thanksgiving! Believe!
Tuesday, November 25, 2008
Friday, November 21, 2008
Sunday, November 16, 2008
Thursday, November 13, 2008
Friday, November 7, 2008
Lynsey and Luke at the entrance...I loved the flowers here!
Tuesday, November 4, 2008
Saturday, November 1, 2008
We are set to head out for Stem Cells this Tuesday! I can not believe it has already been 6 months since he last got them. People always tell me, doesn't time go by so slowly for you? It is actually the opposite...it goes by way too fast. This next week it will be 1 year and 8 months since Luke was hurt. Yes, we would like to see him doing more, but we are so thankful for how far he has come. We know the best is yet to come...all in His time. So, please remember, as you set out to vote this Tuesday, say prayers for healing and recovery for our little Gladiator...together we can pray those cells go where they need to go for more healing in Luke! Believe!
Sunday, October 26, 2008
Wednesday, October 22, 2008
Monday, October 20, 2008
This coming Monday, October 27th, The Doctors, the new medical talk show created by the producers of Dr. Phil, will feature two CBR families-the Hextells and the Barbers- whose lives have been significantly changed by the decision to bank their baby's cord blood stem cells.
During the interview, the parents of Dallas Hextell and Hannah Barber , who were both diagnosed with a form of brain injury share their perspectives on the importance of cord blood banking education. The show's celebrity host, Dr. Travis Stork, as well as resident Ob/Gyn expert Dr. Lisa Masterson, lead the discussion about how a child's own cord blood stem cells are being used in regenerative therapies designed to help heal injuries to the brain. As you know from many of our CBR Moms conference calls, there are many new developments for the use of cord blood stem cells in regenerative medicine. This show will be a great educational tool not only for you, but for all of those who are looking to learn more about cord blood banking!
Luke continues to do good....thanks so much for continuing to pray for his continued healing and recovery. Believe!!
Wednesday, October 15, 2008
Luke has had a busy week. Mike took the kids with his family up to Greer this weekend while I had a scrapbooking event. They had a great time even though the weather didn't cooperate as much as they had hoped. Monday we took a walk down to the neighborhood park. Luke loved being there and going on the swings and slide. Then last night we got out the T-ball set....I tell you, the kid amazes me so much! In his first 5 swings he hit the ball off the tee with his first swing every single time. I think he played for over a half an hour just hitting the ball. Then it was time to get out the Barbie jeep...the first time around he started out good, then wasn't so sure. However, after we ate dinner, his cousins came over to get it in it with him and he loved it!!! Him and Tyler just took off down the road, Luke of course kept wanting to steer it off road to do some four-wheeling. The funny thing is, when Mike first put Luke in, he reached right down to where the gear shift is. The kid remembers everything!!! Don't worry we are not going to make him ride in a pink Barbie jeep...Mike is going to give it a custom paint job:) We just figured why spend $400 when we have one already. This week we have also started the new NACD program. I am really liking the program they gave us this time, it has a lot of school-like activities for Luke which I think is good. Yesterday was our first day back to work with it, please pray that Luke will get better every day with it because it sure beats driving to therapy. Thanks again so much for everything!! Believe!
Wednesday, October 8, 2008
Lynsey and Luke in their Halloween costumes!
Lynsey loved this pose.
With their cousins.
Thursday, October 2, 2008
Sunday, September 28, 2008
Friday, September 26, 2008
Wednesday, September 24, 2008
Luke kicking the ball to knock over the pins.
Standing with help from a big ball.
...And says, I'll walk.Please hold my hand.I know that this will hurt, I know you understand.Please (mommy) don't cry.This is already hard.Let's go, don't worry.I'll walk.
We are looking forward to seeing many of you this Saturday night at the fundraiser. We will be using any money raised to help pay for more Stem Cell Therapy in November. This will get us closer to hearing those words Mike and I so long to hear, "I'll Walk." Thank you so much to everyone for your continued support. I don't think I have said it in awhile, but we would never want to walk this walk alone, you mean so much to us!! Believe!!
Monday, September 22, 2008
Fall is the season of bountiful blessings and giving thanks. Do me a favor, this week look around you at all of the blessings you have in your life, you might be surprised. Trust me, you never realize how some of the things we take for granted every day are the biggest blessings...until they are gone. I would give anything to hear Luke say, "I Love you mom," to see him walking out to parent pick-up at school, to see him outside riding his bike, to hear him talk about the wabbits, to bug him about doing his homework, you know it really is the little things that make life. Look around and realize how blessed you are, even in these trying times everyone seems to be in, then look up and Give Thanks. "Let us not become weary of doing good, for at the proper time we will reap a harvest if we do not give up." Galatians 6:9 Believe!
Tuesday, September 16, 2008
Now for the big push....the big Fundraiser is only 11 days from today!!!! It is coming up fast. Make sure if you have not signed up yet, you do so today at www.evsol.org. As of now they are at about 400 people, but have room for 700...so let's fill up Tempe Diablo Stadium. In addition to the auction/raffle items I previously posted, here are some more that have since been added: Since my last email we’ve added a bunch more stuff including dinner for 10 at the new Outback Steakhouse at the San Tan Mall, a $250 gift card to City Hall Steakhouse, $100 to Fleming’s, $100 to Majerle’s restaurant, A Suns VIP package that includes 2 lower level tix, a tour of the locker room and the ability to sit on the bench during warm ups, 5 different signed pics of the Suns, an all star weekend package, A Matco tool drawer set (thx Mr. Anderson!)….amongst tons of other sports stuff, fitness packages, kids stuff, etc. the 2 jerseys (Ryne Sandberg and Shaq have been beautifully double matted framed professionally…they look incredible. It is going to be a great night, so don't miss out! A HUGE thanks to everyone at East Valley Sol for all of the hard work they have put into this. I pray you will be blessed a hundred times over for your extreme generosity! Thanks to everyone that has already signed up...may you be blessed many times over as well! Believe!
Thursday, September 11, 2008
Monday, September 8, 2008
For those of you that have signed up for the fundraiser...many have asked if you will receive tickets in the mail. The answer is no, your name will be on a list the night you arrive. For more details on the fundraiser you can go back a few posts or go to www.evsol.org. Thanks so much for your prayers. I know that we have been blessed in so many ways along this journey. I know that the hand of God has been in our lives at the times when we needed Him most. Someday I know we will look back at this period of our lives and realize that there were only one set of footprints in the sand. I know we could not have gotten thru this otherwise, had He not carried us thru as He continues to do day in and day out, with all of you on the side lines cheering us on. Believe!
Wednesday, September 3, 2008
Monday, September 1, 2008
Hope you all had a great Labor Day weekend! We did...camping up north, although we did come home a day early due to the rain. Luke had lots of fun doing things outdoors...launching rockets, riding quads and razr, throwing pine cones. Let me tell you, he remembers where the gas is on the quad and wants to go full throttle! Today Luke was able to ride a stationary bike my dad used when he was getting back from knee surgery. Luke did awesome as you can see in the video! Remember..lots of prayers for his surgery on Wednesday...pray the only regret we have is not doing it sooner, because he improves so much from it. Yesterday my nephew was over and I had the telethon on for a little while. We were talking about kids in wheelchairs and T said, "Luke can't go on TV because his eyes are closed and everyone will think he is sleeping." I had to laught then I told him only two more days and Luke's eyes will be open. T said, "Yes and when his eyes are open he can talk." Oh, to have the faith of a child. Pray that T is right...with God all things are possible. Believe!
Thursday, August 28, 2008
Next, we had the pre-op appt with the eye dr this morning. The surgery is a go for Wed morning, so please fire up the prayer chains for a safe surgery and smooth recovery. He just warned us Luke will be uncomfortable for a few days, and will have some black eyes for a few weeks. Here is my ultimate prayer though, I asked him how many times he has seen the eyes start opening on their own after the surgery has been done (because it is reversible,) his answer was one time. So, my prayer is that Luke will be number two!!! Have a safe and happy Labor Day weekend! Thanks so much for your continued support...don't miss my earlier post below about the fundraiser (see what else Kurt Warner did) and always believe! Great things are done when man and mountains meet, These are not done by walking down the street.
Saturday, August 23, 2008
Chloe Levine, who suffered brain injury from a stroke before she was born, is one of the latest CBR Clients (Cord Blood Registry) whose life is now dramatically different because her parents saved her cord blood. Her inspiring story, which was broadcast on the news this week, clearly shows the exciting new uses for cord blood and the profound impact it has had for Chloe and her family. Here is the link: http://www.cordblood.com/azfamily1.asp.Injuries and accidents can happen to anyone at anytime. More than 1 million children sustain brain injuries each year in the U.S. Based on Chloe's experience - as well as several other CBR children - a child's own cord blood holds tremendous promise as a treatment for healing injuries to the brain and other nerve tissue. I encourage you to take a look at Chloe's story and share it with your family and friends.
We recently found out we are expecting a new baby in March 2009 (a huge surprise for us but nonetheless we know this baby is coming for a reason.) You better believe we are saving that child's cord blood. In fact, I have already emailed the doctor at Duke that is using the cord blood in cases of CP. As of now, they are not doing it using siblings cord blood, but she definitely said to save it because it is coming! So, I will probably be emailing her every three months to see if it is time for that yet. It would just be so much easier if it were already happening in the US!
Updates on Luke this week: making new sounds, if only we knew what he is trying to tell us. I was amazed at how good he did at therapy on Friday working on crawling and getting onto the couch. We have an appointment this Thursday for the pre-op visit for his eye surgery. Please continue prayers of healing and restoration, as well as guidance on the stem cells once again. When the Spirit of truth comes, he will guide you into all truth ... John 16:13 NLT Thanks so much! Believe!
Sunday, August 17, 2008
Tuesday, August 12, 2008
Trust in the Lord with all your heart; do not depend on your own understanding. Proverbs 3:5 NLT
Wednesday, August 6, 2008
We also started back at the hyperbaric oxygen this week. We were really worried how he would do, but so far he has done great! Please continue prayers of healing and restoration in our little man...thanks for continuing to check on him:) "Call on me, and I will answer you, and show you great and mighty things, which you do not know.” Jeremiah 33:3
Wednesday, July 30, 2008
Monday afternoon he had therapy at St. Joe's. They were talking to me about their program, etc., so I did not get to see a lot of what he did. The speech therapist did tell me they did some cognitive testing on Luke. Basically, they tell him stories, scenarios, etc. from a book and he points to the correct answer. Well....drum roll please....so far in the testing he is at a cognitive level of a 6 year 4 month old!!! Praise God for this in a HUGE way because when they tested him in January, they determined him to be very severely cognitively delayed! So he has essentially made over 6 years progress in 7 months, and they still have more testing to do. She was very pleased with where he is at. So Monday ended up being a great day!
For those of you that know me well, you know I am a major planner and list maker. Well, if there is one thing I have learned thru this journey it is, our plans are not our own. I would have never thought or planned two years ago that my life would revolve around therapies, drs appointments, hospital stays, surgeries, etc. I mean Luke was just starting first grade, both my kids were in school all day. I thought now I will have all the time in the world....funny how quick that can change. You know what though, I would not change one second of it, if it means Luke getting better and he is! We will keep doing whatever we need to do for our little guy. I saw a quote the other day that said, "Sometimes we make plans and God laughs." How true that can be...my life plan certainly did not contain the events of March 6, 2007, and if I had a choice, that day would be wiped away. Still, I can't help but know that day is part of God's plan for our lives in some way, shape or form. So much good has come from that horrible day and all of you our family and friends that have been there with us are a huge part of that. So thanks...please continue to pray for healing and restoration in Lukey. Believe because as it says in Jeremiah 29:11...we know God (not just us) has great plans for Luke!
Friday, July 25, 2008
On another note, one great thing that has been a huge help for me, is now we can slide Luke's wheelchair up to the table, give him some finger foods and he can feed himself. So for breakfast I cut up pancakes for him, and lunch give him some lunch meat, cheese, and some chips, and dinner cut up pizza or whatever, and he will eat it all by himself, using his fingers of course, but I think when his eyes are open he will do good with silverware. A funny thing about this is for lunch he will feel for all of the chips and eat those first before eating the other stuff. Little stinker! He is also continuing to try to say words and making a lot of sounds. Last night he said, "go," once and has a new sound, "ung" that we are not sure what he is trying to tell us. Pray for his airflow to increase for speech and his oral motor muscles to get strong.
Also, you will notice on the left side I added a fundraiser that is coming on Sept. 27th for Luke. It is going to be a fun, fun night. If you would like more info, visit their web site at http://www.eastvalleysol.org/ or contact Nick. Online registration is now up and going on their web site!
Thanks so much for your continued support, prayers, words of encouragement, they get us thru the bad days and keep us pressing forward to that light we know is somewhere at the end of this tunnel that can sometimes appear to be never ending! Believe!
Thursday, July 17, 2008
Wednesday, July 16, 2008
Someone sent me an email questionnaire this week, one question was who is the one person you miss the most...my answer was my son prior to March 6, 2007 at around 5pm. We just all want him to get better so bad. We are certainly very thankful for how far he has come and very, very blessed that he is here at all, given the trauma he survied. Some days are just harder than others. I also feel bad for Lynsey and how much this has affected her and how much she has had to sacrifice, barely complaining at all. She has not had a summer vacation now for two years, her life is scheduled around Luke's therapies, she is shuffled between aunts, grams, nanas, friends (although I am sure she loves this and we certainly appreciate it very much.) She is starting school here in another few weeks, and I know she desperately wants her brother back with her at school. This will be the last year they will have to be in the same school, as she goes to Jr. High next year. So, please continue prayers of healing and restoration in our little man...we want our perfect little boy back more than words can say. In time it will happen because this much I do know...God promises a safe landing, not a calm passage and if God brings you to it, He will bring you through it. Believe!
Friday, July 11, 2008
Well it is end of week number three at Barrow's. This week they worked on Luke walking with the walker. He made it 50 feet on Thursday. This is with a lot of help, keep is mind, but with time we know he will get better. He does great with his right foot, but his left foot has a lot of tone he has to work against. They are trying to figure out how to best work around that, although Mike said today the therapist said he did better than yesterday. Today they took three of the kids on a little outing to a place called Stuffington Bear. Luke made a horny toad.
I have to say, everyone at Barrow's has been great, our stay here has been great! It has for sure been a little push Luke needed and also given us lots of ideas of things we can do with him at home. They have given us a discharge date of next Friday if all the paperwork goes thru. Then we will continue going up there for outpatient therapy, although they have not told us how many times per week that will be. We are also going to start Luke back going to the Hyperbaric Oxygen Therapy here in a few weeks. They recommend you do it 3 months following stem cells to give them sort of a boost. We saw great results with it the first time, so we will give it another go. Thanks for all of your support...have a great weekend, and always believe!
Tuesday, July 8, 2008
Today we had Luke's evaluation with the NACD. They give us an evaluation to fill out on the program and I had put that we felt Luke was reaching a plateau-well that was my first mistake! The last time they evaluated Luke was the beginning of April, before the stem cell therapy. Well they are amazed at the progress he has made. She looked at me and said, "Stacey, the last time we met this kid could not hold his head up, he certainly could not sit up, could not move his left hand, his left leg was much weaker than his right where now they are equal, and you think he has reached a plateau." Okay, so what do I know, I guess that is what happens when you are with him day in and day out, you forget about the small things that are getting us to the BIG thing! So she was super impressed with his progress and also the strength he has in his muscles.
Now this was my post from Monday that I never got around to posting...
Luke had a great day in therapy today! His started off with the cutest puppy coming by for a visit, pet therapy. They put the little shi-zuh on Luke's lap and let him pet him; he loved it. He especially liked it when the dog barked for him, and hours later when I asked him how many barks Tiger did, he would hold up two fingers. Then in speech he worked lots on blowing bubbles and blowing his horns. His mouth seems to be getting so many more movements. (Mike and Jaimi, the therapists love the Oregon ducks blower horn and want to know where they can get them. It is Luke's favorite horn to blow:) This afternoon he was able to make a fire truck and spider out of food with the great recreational therapist, Natalie, who also happens to be the aunt/sister of our dear neighbors. I think he had the most fun licking the frosting off his hands. They told me to put some on his left hand, sure enough he brought it up to his mouth to lick off. They all agree he is capable of doing so much with that arm (he proved that today), but has some "learned non-use" of it. The best thing of the day came when Luke woke up from an afternoon cat-nap. Mike had just gotten there. He woke up saying a new sound, "n." Then it became a, "no," sound. We told him no more using his hand to show us no because now he can say it. So I asked him if he liked barbie dolls and he said, "no." Praise God for all of the great things we are seeing...He can only do great, awesome things, and I can't wait to see what tomorrow brings!
The Lord is good to those who depend on him, to those who search for him. Lamentations 3:25
Thursday, July 3, 2008
Wednesday, July 2, 2008
Luke is having a hard time staying motivated for his therapies. He has learned to tell them no or pretend like he is asleep so he does not have to work. Yesterday they had him trying to walk on the parallel bars. He did it great the first time, then she let him walk backwards to get back. So, he learned then if he took a few steps forward the next time, then he could go back and be at the end. So that was what he did. So, our prayer request is to pray for Luke to get motivated to work. I guess I shouldn't have mentioned his stubborn side earlier this week because that is definetly coming thru:) Believe!
My words…will come true at the proper time.” (Luke 1:20)
“What the Lord has said…will be accomplished!” (Luke 1:45)
“The Lord is sure to accomplish those things
A loving heart has waited long to see;
Those words will be fulfilled to which she clings,
Because her God has promised faithfully;
And, knowing Him, she ne’er can doubt His Word;
He speaks and it is done. The mighty Lord! "
Monday, June 30, 2008
Tonight he has discovered the controls on the bed and thinks it is funny to move the bed up and down...not sure how I am going to stop that one. We'll see...
Tomorrow Luke is going to get casts on both of this legs, it is called serial casting. The purpose is to get his feet and legs in the right position for walking and standing. The guy that came in and spoke to me about it said he really thinks Luke will benefit from the casting. Basically, what has happened is they are not in the right position due to his brain sending mixed signals to the muscles in his legs and feet and he has developed some bad patterns. So, they cast his feet and legs in the position they need to be in for a week, take the casts off, then redo for another week, then take off again, fit his feet for new AFO braces (a kind that is more geared towards walking and standing,) then recast for another week. Hopefully at the end of those 3 weeks, his feet will be where they need to be and he will be better able to walk or at least a little more able to try without having to work around the changes that have taken place. He is able and encouraged to still do his therapies every day and put as much weight as possible on his feet while they are in the casts. Other than that...not much else to report. Thanks for everything...believe!
Friday, June 27, 2008
Trust in the Lord with all your heart; do not depend on your own understanding. Proverbs 3:5 NLT