Sorry it has been so long. This week has been crazy. Luke started outpatient therapy at St. Joe's on Wed and Thurs. So far, so good. He will have outpatient therapy there for about a month, then we will continue on with the home therapies. In other news....Mike and I have made the HUGE decision to have Luke's eyes opened with a lid lifting surgery. As you know, we have been going back and forth on this now for over a year! So many people that we met at Barrow's really feel it will be a huge benefit to Luke to get them opened. They think it will motivate him more, plus so much of our sense of balance comes with being able to see where we are in relation to the world around us. I think the deciding factor for us was the resident who was working with Dr. Kwasnica for the month we were there has a daughter who was born with one of her eye lids not opening. He said the surgery was the best thing they did for her. He came and talked to Mike and I both and answered a lot of our questions and fears about the procedure. I don't think it was chance this doctor just happened to be there the month we were...someone is giving us a big sign to get a move on! So please pray we are making the right decision with this...please pray those eyes will open before and the surgery will not be necessary. It is an outpatient surgery and is scheduled for Sept. 3rd.
On another note, one great thing that has been a huge help for me, is now we can slide Luke's wheelchair up to the table, give him some finger foods and he can feed himself. So for breakfast I cut up pancakes for him, and lunch give him some lunch meat, cheese, and some chips, and dinner cut up pizza or whatever, and he will eat it all by himself, using his fingers of course, but I think when his eyes are open he will do good with silverware. A funny thing about this is for lunch he will feel for all of the chips and eat those first before eating the other stuff. Little stinker! He is also continuing to try to say words and making a lot of sounds. Last night he said, "go," once and has a new sound, "ung" that we are not sure what he is trying to tell us. Pray for his airflow to increase for speech and his oral motor muscles to get strong.
Also, you will notice on the left side I added a fundraiser that is coming on Sept. 27th for Luke. It is going to be a fun, fun night. If you would like more info, visit their web site at http://www.eastvalleysol.org/ or contact Nick. Online registration is now up and going on their web site!
Thanks so much for your continued support, prayers, words of encouragement, they get us thru the bad days and keep us pressing forward to that light we know is somewhere at the end of this tunnel that can sometimes appear to be never ending! Believe!
On another note, one great thing that has been a huge help for me, is now we can slide Luke's wheelchair up to the table, give him some finger foods and he can feed himself. So for breakfast I cut up pancakes for him, and lunch give him some lunch meat, cheese, and some chips, and dinner cut up pizza or whatever, and he will eat it all by himself, using his fingers of course, but I think when his eyes are open he will do good with silverware. A funny thing about this is for lunch he will feel for all of the chips and eat those first before eating the other stuff. Little stinker! He is also continuing to try to say words and making a lot of sounds. Last night he said, "go," once and has a new sound, "ung" that we are not sure what he is trying to tell us. Pray for his airflow to increase for speech and his oral motor muscles to get strong.
Also, you will notice on the left side I added a fundraiser that is coming on Sept. 27th for Luke. It is going to be a fun, fun night. If you would like more info, visit their web site at http://www.eastvalleysol.org/ or contact Nick. Online registration is now up and going on their web site!
Thanks so much for your continued support, prayers, words of encouragement, they get us thru the bad days and keep us pressing forward to that light we know is somewhere at the end of this tunnel that can sometimes appear to be never ending! Believe!
2 comments:
It's so good to see Luke standing. He has made so much progress and I know there will be more to come. Hugs to you all from Ohio. Sally
Luke, its so good to see you standing and walking!! We'll say a special prayer for you on Sept 3rd for your eye surgery. Can't wait to see those beautiful eyes.
Love ya, April
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