Wednesday, July 16, 2008

Ready to be home

Luke is finishing up his last week at Barrow's...1 more day to go!!!! I promise more pics soon. We are so excited to be going home for good after almost 4 weeks. We are certainly glad for the progress Luke has made. I figured up the hours of therapy he has had while we have been here and so far it is about 35 hours. So, I think the progress he has made is great! We will be starting outpatient therapy here at Barrow's next week. He will be getting 2 hours of Speech, OT, and PT each week here. Hopefully we can still keep him with an hour of horse therapy a week and an hour of PT at home with his physical therapist, Greg, plus we have a new program from the NACD that has some good things for us to do with him. So, we will certainly be busy, plus we plan to start oxygen therapy again the first week or so in August. Anyone know where we can get the extra 3-4 hours per day we need to do all of this therapy? It would be such a help if there was an oxygen chamber in the east valley because that is a 4 hour plus ordeal by the time we drive there and back and it is every day. We will do 40 dives then decide if we want to do more. Here is why we want to do the oxygen therapy (HBO,) again: "HBO can boast the stem cells provided the timing is right. We must let them find their target tissue, find a home and set up housekeeping and that process can take up to 90 days. After that mark you can use high levels of Oxygen to boast their growth."

Someone sent me an email questionnaire this week, one question was who is the one person you miss the most...my answer was my son prior to March 6, 2007 at around 5pm. We just all want him to get better so bad. We are certainly very thankful for how far he has come and very, very blessed that he is here at all, given the trauma he survied. Some days are just harder than others. I also feel bad for Lynsey and how much this has affected her and how much she has had to sacrifice, barely complaining at all. She has not had a summer vacation now for two years, her life is scheduled around Luke's therapies, she is shuffled between aunts, grams, nanas, friends (although I am sure she loves this and we certainly appreciate it very much.) She is starting school here in another few weeks, and I know she desperately wants her brother back with her at school. This will be the last year they will have to be in the same school, as she goes to Jr. High next year. So, please continue prayers of healing and restoration in our little man...we want our perfect little boy back more than words can say. In time it will happen because this much I do know...God promises a safe landing, not a calm passage and if God brings you to it, He will bring you through it. Believe!

3 comments:

Anonymous said...

Wow. I just finished blogging on Santana's site and came over to here to see that you seem to be feeling the same way as I have. Keep your head up. I know I have been having a boo hoo day.


Have I not commanded you? Be strong and courageous. Do not be terrified;, do not be discouraged, for the Lord your God will be with you wherever you go. - Josua 1:9

Unknown said...

These 4 weeks have gone by fast. All of your hard work will pay off 100% I truly believe that. Just remember You, Mike, Lynsey and Luke are always in our thoughts and prayers. Especially on days like these.
Love, April

Anonymous said...

Your message what touching Stacey and I must say..... You are such a wonderful Mother and you are the true meaning of a MOM. Luke is striving due to his amazing strength and his wonderful family behind him ALL THE WAY. You are doing such great things to help him recover his strength and mobility. We truly believe he will be well soon and he will be able to personally say THANKS to his wonderful family for the dedication to heal him. I see Lynsey around often (dance,around QC) and she has the most amazing grace and her smile is miles long. She is truly an angel and you can just see her love for Luke when we ask "how is Luke? or Yeah for Luke! Keep your spirits up because you are doing an amazing job balancing all this - We pray for the O2 chamber to do great things with the stem cells. May God Bless your family and keep Luke progressing! I showed off Luke's webpage to all my coworkers (PT and OT's) and they were so impressed!