Saturday, April 24, 2010


Well last week was a good, positive post on how hard working Luke has been....this week not so much! Luke is being stubborn Luke this week not wanting to perform at all. He is given speech homework to do, and since Thursday absolutely refuses to do what she sends him homewith . The bad thing is HE CAN DO IT!!! Then, yesterday I took him for his evaluation with the PT/OT at school. He was totally out of sorts, not himself at all. He would not even point to his eye, nose, etc. when asked. I was one frustrated mother walking out of there because once again, I knew HE COULD DO IT!!! So, for whatever reason this week he is just not wanting to perform. He has had a lot of evaluations lately, so maybe he is just sick of doing it, who knows. I just pray this week is better, and that when he does start school in 3 months, they will be blown away at how much he can really do! That is what I love about Mondays, a fresh start, hoping for a good one:)

Saturday, April 17, 2010

Rethink Possible!

Last weekend Mike was watching the Masters Golf tournament. I noticed the At&t commercial with a new slogan....Rethink Possible! How great is that! Well this week has been an awesome week for Luke. He is using his voice and words (although hard to understand) A TON more this week! Cute story...there is a commercial for a new movie coming out called "Kick A$$," (who thinks of a title like that??) Anyway, Luke totally latched onto it, and as soon as the commercial was over was saying the word-albeit very laborious as it comes out sound by sound. He was so excited when Mike asked him if he was talking about the movie-so happy to be understood!! I think he is for sure rethinking what is possible with his speech!! We will give him time to get it all together, but I gotta feeling this boy is going to be talking our ears off by the end of this year!

He has also been moving around so much more. In a way this is bad, as we have wood floors throughout a lot of the house. The wood floors are good for him to practice on as the movement is easier, but bad when he gets there and falls. This morning he is not wanting to stay on the carpet. He has been scooting into the pantry, and trying to go down the hall. He also reached a major milestone this week in OT when he crawled three feet by himself. In addition to all of this, he has decided the last two mornings that when it is time to get up, he doesn't need to wait for me to come and get him, he will just get out of bed by himself by scooting down. All this new movement just means we have to watch this kid like a hawk. It is a good thing though. It just shows that when we rethink possible we can reach new heights, break boundaries that were set, and reach goals we (or more like they) thought were unreachable. By rethinking possible, great things are on the horizon, and Oh the places this kid is going to go!!

I almost forgot to add, I had the meeting with the school about Luke going back in July. The meeting went great! I feel confident he will be put in the appropriate spot. The other good news was, if we just want him to go half days to start that is an option too.

Tuesday, April 13, 2010

Follow Up...

Luke had a great week of appointments last week! We met with the new speech therapist last week, and I just know she is going to be great for Luke. She really feels there is no reason he should not be talking other than his muscles are very weak, and it is a lot of work for him to do it. He has gotten into some very bad habits and just does not want to work to get this words out. She wrote in her evaluation that the prognosis is very good for improved speech, language, and cognition. She told me yesterday that she would really like to see Luke for two hours at a time instead of one so he will be seeing her for four hours a week. Then, she sends him home with "homework" to work on. He really likes her too. The only downside is it is an hour drive from our house, but if it means he is talking it will be worth it. She did tell us it will be a slow process, but in the end it will all be worth it.

Then on Wednesday we met with the NACD from Utah. Mr. Doman was very thrilled with Luke's increased strength, focus, reaction time, so that was a great visit too.

On top of all this we started a new therapy called Chronologically Controlled Developmental Therapy. Luke seems to really like it. We will give it a few months to see if we are noticing any changes. You can read more about it here:

You can probably guess Luke's days are packed with therapy. Please pray we continue to see improvements. Another huge prayer request, I have contacted the school to get the ball rolling for Luke to start out back in July. Please pray he gets where he needs to be to continue to improve the most. If anyone has any suggestions here please let me know! Thanks for continuing to follow Luke's journey!

Friday, April 2, 2010

Here we go...

My dad reported Luke had a great day crawling today in therapy. The therapist commented that he is so close! Then we got home and Luke had received some Easter cards in the mail. I gave them to open, and he was super excited to find some money inside. He then proceeded to tear the envelopes into about a million pieces. Despite the mess it was making, I let him because he was using lefty so good to help him!! I guess therapy comes in many forms!

Next week is super crazy! Luke has a new therapist that will begin seeing him at home on Tuesdays and Thursdays. I am very excited about some ideas this guy has, and I could tell Luke liked him right away. When I asked him after he left if he wanted him to come back and help him he showed me a big yes! On Monday we also have an eval with a new speech therapist. Please pray for great visits with amazing results and continued progress. God is good! Have a blessed Easter weekend!

1 Peter 1:3
Praise be to the God and Father of our Lord Jesus Christ! In his great mercy he has given us new birth into a living hope through the resurrection of Jesus Christ from the dead... (NIV)