We are getting close to that time where we need to decide whether or not we are going to do the Stem Cell Therapy again. On Friday, when Luke's home bound Physical Therapist came to see him, he asked me that same question. I told him we are struggling with the decision, so I asked him what he would do. He said, based on the improvements he has seen in Luke he would for sure do it again. He said the progress Luke has made since April takes most kids that he sees years to make. See, Mike and I don't know these things. To us, walking and talking is the progress we want to see, forgetting about the baby steps it takes to get there. So, please pray for guidance as we decide if, where, and when to go for the therapy again. Luke can go again the end of October. This brings me to my next point...I have said this before, but if you are pregnant or know anyone that is, please tell them to save that cord blood! My sister did when she had her son in April and recently received this story from the place it is stored:
Chloe Levine, who suffered brain injury from a stroke before she was born, is one of the latest CBR Clients (Cord Blood Registry) whose life is now dramatically different because her parents saved her cord blood. Her inspiring story, which was broadcast on the news this week, clearly shows the exciting new uses for cord blood and the profound impact it has had for Chloe and her family. Here is the link: http://www.cordblood.com/azfamily1.asp.Injuries and accidents can happen to anyone at anytime. More than 1 million children sustain brain injuries each year in the U.S. Based on Chloe's experience - as well as several other CBR children - a child's own cord blood holds tremendous promise as a treatment for healing injuries to the brain and other nerve tissue. I encourage you to take a look at Chloe's story and share it with your family and friends.
We recently found out we are expecting a new baby in March 2009 (a huge surprise for us but nonetheless we know this baby is coming for a reason.) You better believe we are saving that child's cord blood. In fact, I have already emailed the doctor at Duke that is using the cord blood in cases of CP. As of now, they are not doing it using siblings cord blood, but she definitely said to save it because it is coming! So, I will probably be emailing her every three months to see if it is time for that yet. It would just be so much easier if it were already happening in the US!
Updates on Luke this week: making new sounds, if only we knew what he is trying to tell us. I was amazed at how good he did at therapy on Friday working on crawling and getting onto the couch. We have an appointment this Thursday for the pre-op visit for his eye surgery. Please continue prayers of healing and restoration, as well as guidance on the stem cells once again. When the Spirit of truth comes, he will guide you into all truth ... John 16:13 NLT Thanks so much! Believe!
8 comments:
Wonderful news - Luke and the baby! Thank you for posting updates! CB
Prayers are coming your way for all the decisions that you have and will make for Luke's treatment. So far you have been spot on with so many improvements! Good wishes on the news of the baby. Hugs from Ohio,
Sally
Congrats on the baby! ; )
I am so glad you are saving the cord! I regret listening to Santana's doctor who said it isn't worth saving Tyree's cord, it would not help Santana and it is too expensive. I guess people don't understand we can't put price tags on our kids!
Luke is AMAZING! I can't wait to see his next jump of improvements when you get stem cells again! I can't wait till we can get Santana there!
What great news about Luke! What fantastic news on your baby! Great plans are being done for your family. Your family will make all the right decisions for Luke and all will be wonderful! He really looks great- what an amazing little man! Keeping the faith.
Stacey that is awesome news! congratulations..on the new addition..our friend's Amy and Scott have a little guy Jacob (carepage jacobvinson) who nearly drowned on the same day as our car accident happened and he's the sweetest little guy!! they were with us in rehab...she found out she was pregnant with number 2 when she was there with us...she's been talking to Duke about using those stem cells as well!! It's crazy what this country can't do with all of this scientific advancement...it's not hurting anyone!! I pray you are led to the right decision for Luke on the stem cells.
Jennifer Foor
cp marissafoor
Congrats on the baby!! Luke is doing so well. We are so happy to see his progress.
Shawna
Congrats on the baby! Luke looks great. It is so nice to watch his progress.You are a great mom Luke, Lindsey and the new baby are lucky to have you.
Shawna
Progress is driving full speed ahead with all the improvements I keep reading about Luke! I'm elated. I will pray for Luke and your guiding hand, all that you have done with Luke is definately working!
Marilyn
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