Tuesday, December 27, 2011
Friday, December 23, 2011
Thursday, December 15, 2011
We started Luke getting neuro feedback a few weeks ago. I actually started the process for it many months ago. We originally met with this doctor back in July, but Luke needed to have a EEG that was seizure-free before he would start the neuro feedback.
A short explanation of what neuro feedback is: Neurofeedback is a type of biofeedback that uses electroencephalography to provide a signal that can be used by a person to receive feedback about brain activity. Basically, it is using the signals, to hopefully retrain the brain. So Luke has had three sessions so far, and we have already noticed some improvements. His behavior has been so much better!! Huge praise God for that!! Honestly, if we see nothing else, if his behavior could just change it would be worth it:) However, we have also noticed he has been attempting to say words once again a lot more. His teacher has also noticed this at school. In fact, yesterday she reported he said hot hog clear as day! He just overall seems to be more focused and more aware. I am excited to see what the remaining appointments will bring. He will do a set of 10 sessions, then be re-evaluated. Typically though, with TBI we are looking at 20-40 sessions. Please pray we continue to see improvements with this!
If you are interested in learning more about Neurofeedback, here are some great sites:
More in-depth explanation of neurofeedback: http://www.behavioralmedicinebc.com/neuro.html
This is the closest I could find to someone like Luke. This person was also very aggressive, Luke is not this bad yet, but I fear as he gets bigger. I pray we have the results they have seen. Luke's injury is also very similar to this person's.
Luke is seeing Dr. Alberto Texidor in Mesa. Ironically, when I first started looking, he would not have been my first choice, he was on vacation for like 3 weeks, plus he doesn't have a web site, which turned me off. However, all roads kept leading back to him, and I am so thankful. He is amazing and Luke really gets along well with him!
Here is a pic Luke's teacher sent me of him using his new scooter at school:
Here is a pic of Luke recently. You can see how big he is getting. I love this picture of him standing by himself. His new record is now 30 seconds.
Thanks for continuing to follow along on Luke's journey. As we approach the five year mark from when he got hurt, I pray there are great things on the horizon!
Thursday, November 3, 2011
Friday, October 28, 2011
Here is a picture of Luke at the mailbox. I have a video of him walking, but thought I had turned off the volume and hadn't. I don't think you want to hear me talking the entire time, so I will get another one soon and post that!
Thursday, October 13, 2011
Friday, September 30, 2011
Yesterday he was showing off at home. He walked (with me helping from behind, but doing very little) all the way to our mailbox and back inside. I am guessing it is at least 100 yards total. I am thinking if he does this every single day, he will get stronger and stronger, and hopefully able to do it with less and less assistance. So, here is how you avid Luke followers can help us out. I would love to fill that mailbox with letters, pictures, postcards, whatever for him when he walks out to check it, to keep him motivated. If you want to help out by mailing him something, send me an email to firstname.lastname@example.org if you do not have our address, and I will get it for you. Thank you so much for helping support Luke on his journey!! We appreciate it more than you will every know.
Wednesday, September 14, 2011
We also had to have sort of a surprise IEP meeting for Luke. He had an incident where he was grabbing another student, and has also continued to grab his teacher and aides. By the Grace of God we had met with a new neuro-psychologist just a week prior. He told me he is very well versed in dealing with school behavior issues should the need every come. He attended the IEP meeting via phone conference and had some great suggestions that everyone on Luke's team agreed to try out and implement some changes. Please pray they work and Luke will no longer have the behavior issues at school. Here is Luke's recent school picture. I think it turned out great!
Other than the behavior issues, things have been great. Thanks so much for checking in! I hope to be better about updating in the future!
Wednesday, August 10, 2011
Sunday, July 31, 2011
Wednesday, July 20, 2011
Friday, July 15, 2011
Tuesday, July 12, 2011
One of Mike's mom's friends has a grandson that plays for the Ranch Cucamonga Quakes. They are part of the Los Angeles Dodgers farm system. She had asked her grandson to sign a ball for Luke for his 11th birthday. He went above and beyond and had the entire team sign the ball. Thank You Vera and Steve for this kind gesture! The ball is proudly displayed in Luke's room now. Go Quakes!!
Sunday, July 3, 2011
We have a couple prayer request:
**Luke has had HORRIBLE behavior lately. Look at any of our arms and you will see the scratches he has left from pinching us. That kid is STRONG!!! We can not really attribute the change in behavior to anything. Please pray we can find an answer to it SOON though before school starts again!!
**Luke will be going back for another Stem Cell treatment in Mexico on July 19th. Pray we see results from this. The same Dr in Mexico will be doing the injection of the stem cells, but a Dr in the US, who has taken us across once, and who we really liked, will be getting the stem cells from the US.
Thanks so much for checking in and have a Happy July 4th Weekend!
Thursday, June 23, 2011
Warning: Long Post:)
We just returned to this wonderful AZ heat from a great vacation in San Diego. We had such a good time. We stayed in a house on Coronado, so we were able to go to the beach, and do a few other things. Check out the pics!
Feeding the ducks that came to the house from the golf course across the street.Luke loves playing (and sometimes throwing) the sand.
Here is what we caught him doing the other night. This is the first time he has reached up like this. Now he thinks it is funny to go over the turn off the TV. Notice how lefty is helping out.
Tuesday, June 7, 2011
Here are some words Lynsey wrote about her little brother:
when i look at him, i see hero. i see never giving up. i see love. i see what i cant describe into words. i see strength. i see inspiration to all. i see little brother.
Here's to a great summer filled with progress and great times!! Thanks for continuing to follow our journey:)
Monday, May 16, 2011
I had Luke's annual IEP (individualized education plan) meeting last week, and let's just say that kid is a ROCKSTAR!!!! I have been following a lot of blogs of families who dread these meetings every year because of the fight that usually results with the school district regarding the results, etc. I have said all along, we could not be more pleased with Luke's transition back into school, and I think his IEP shows the direct results of that. Luke, for the most part, met almost every single goal that was set for him this year!! To take it back a few steps, when Luke was originally evaluated to go back to school, which I believe was in 2008, some of the things they did to evaluate him were have him throw a ball, try to sit up, blow bubbles, stick is tongue out, my how far he has come since that original evaluation. Note: We did not send him back to school after that original eval, we waited two years, to concentrate on therapy. Here is a breakdown of what/how Luke is doing:
Occupational Therapy- He has been busy drawing shapes, learning how to use scissors again (with his left hand). Some of the main goals he met here were drawing various shapes, and integrating lefty into more tasks, which he continues to do great on!
Physical Therapy-He has been working on standing balance and walking with minimum assistance. I am pleased that next year, we will be working with Luke using his walker more at school during the school day to get around the classroom instead of his wheelchair.
Speech-The therapist was very pleased with how Luke is doing. She said he is ready, willing, and able to communicate his needs. Some of the future goals for Luke include, saying more than just yes/no, using a communication device which will speak in sentences for him, and sequencing more sounds. We are going to start working on really having Luke say hi/bye for the next words he will hopefully say by mouth, along with yes/no.
In Class goals-Luke is able to read some basic sight words when they are presented to him. He is also matching words with pictures, and beginning to learn to even spell some simple words using letter cards. He is doing great in math using a ten frame to count up to 12, and even scored 100% on the addition problems that were presented to him. Next year he will begin to work on word problems involving real life situations (money,) subtraction, spelling and using more words, writing his first name.
So, I am very excited with how Luke has progressed this year. A HUGE thing for next year, is he will be going all day every day, instead of this year only go for a full day on Monday and Friday. Way to go Luke! We are so proud of you and so thankful for your amazing teacher, aides, and the wonderful team that works with you everyday at QCMS!!!
"A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles." -Christopher Reeve
Sunday, April 24, 2011
This morning as Luke was going thru his Easter basket using both hands, I thought to myself there is no way he was doing that last Easter. So, I went thru the pics from last year, and look at the difference:
This year, using lefty to help rip open the package. In fact, we call him shredder in our house because he loves to rip and tear up stuff.
Thursday, April 21, 2011
Today is probably the darkest day in the history of man kind. The day that Jesus died on the cross. It was no doubt the most darkest, most painful, most horrible, most discouraging, most awful day of His life. It was the day he died, and to many it looked like the enemy had won. We all know that was not the case, for God had other plans. They may have put him in a crave, blocked it with a stone, but as we all know, Sunday morning was the beginning of a better story!!
The Easter story teaches me that no matter how frustrated I may be when Luke seems to have reached a plateau, or is really acting out, or just frustrated by what he should be able to do and should be doing, or how long it has been since he got hurt, there is a greater plan. We will not be stuck on Good Friday forever. Someday, our Sunday is coming. We know He will have the final say in this story, and it will be good. God bless you all this Easter weekend...I am excited because Sunday is coming, and HE IS RISEN!!! Death could not hold him!!
Friday, April 15, 2011