Luke had his opthamologist visit this morning. I must say...the doctor was great and hopeful. There was bad news and good news (most was good.) The good news is we now know why Luke's eyes have not opened. The bad news is his third cranial nerve is either damaged or paralyzed. The other good news is there is still hope that the nerve could wake up. He wants to give it another month then see Luke again. If the nerve does not wake up, then there are 2 surgeries that can be done to help Luke open his eyes and see. Basically, the third cranial nerve is responsible for opening eyes, constricting pupil, and also movement within the eye, none of which Luke has. There are no exercises that can be done to get it to function, it is just a wait and see game. The oxygen therapy can help damaged nerves though. God has been good so far, and it seems most of our miracles have come just in the nick of time, so his next appt is 9/26, so maybe on 9/24 he will open his eyes (or sooner:)
As for the EEG results, the frustration continues with the neurologist. He called back last night after 9 when I had turned off my cell phone. He left a message that the EEG was still slow (didn't say whether or not it had improved over the previous one,) and there was POSSIBLE seizure activity. Then went on to say if he is on anit-seizure medicine leave him on it, but if he is not no need to start him on it???? So basically, he didn't even bother to look up Luke's chart or history to know he is on anti-seizure meds. I did leave a message today hoping to get some more info, but was told he is getting ready to take another vacation Thursday. The good news I got is he is retiring, so we are hoping to get Luke into the guy who is taking his place. If anyone in AZ knows of a great neurologist, I would love to hear it. I just think it is so amazing as soon as we tell anyone Luke's neurosurgeon is Dr. Manwaring everyone says he is in great hands ..why can't there be more doctors out there like him? So please continue prayers...believe...and one of these days Luke's eyes will open:)
6 comments:
Here is the name of a WONDERFUL neurologist. She is so sweet and her bedside manner is fantastic.
Sweetman, Laura L., MD Pediatric
Neurology,
726 North Greenfield Road
Suite 110
Gilbert, AZ 85234
(480) 834-8885
stacey-
I hope the name of the neurologist helps you out. I am sorry to hear you are having trouble with the Neurologist at PCH. If you have any questions please do not hesitate to ask. We are continuing to pray for Luke and his continued improvement.
Hi Luke, I hope your eyes are getting better. My mom said you are growing. Maddie Nichols
Stacey...Keep seeing with your heart and faith !
Stacey,
Thank you so much for new site! It was so good to get caught up. I will definately be praying about that 3rd cranial nerve...Lord may it wake up! I'm going to ask around about other good neurologists through my speech agency.
Stacey, I am glad we got Dr. Manwaring involved at the beginning, at least you have him to keep you feeling positive. Luke is in good hands with him. I hope the new neurologist will be all that you hope for. At least you now have some news about Luke's eyes.. Keep up the good work, you and Mike are doing a great job with him. We think of you all daily and hope that Luke continues his impovements. Sandy
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