Tuesday, April 29, 2008

Great few days!

Well...Luke has had a great few days. We kind of took it easy on him after we got back from San Diego. They say rest is the best thing right after Stem Cell Therapy. On Sunday I started him right back on his home therapy program, and he is doing great!! Yesterday, every time I put him on his stomach he would roll over. He also sat up by himself for quite a long time. He is so cute...I will start counting for him. The farther I count up with him still sitting up by himself he just gets a big grin on his face and starts laughing. Another cute thing is with his left leg. We have been doing a lot of therapy on that leg, well to distract him I will usually play, " his little piggy"...well his big toe always goes to Disneyland...Luke thinks that is funny. So now when I tell them to bring his toe that goes to Disneyland to his mouth, he will grab his left leg (remember this is the side of his body that is very slowly coming around) up and put his toe in his mouth.

I realized I never mentioned the awesome eye dr visit we had the dr in San Diego went. Ok, so we have taken Luke to three doctors here in AZ, and not ONE of them did the extensive evaluation that this dr did on Luke. We were there for over two hours. He was awesome!! I guess the difference is, the ones we had seen were all opthamologists, where he is an optometrist. Anyway, he told us he absolutely would not do the lid opening surgery at least for another year. He said there is still time for new pathways to be made that could open the lid. He did tell us Luke needs glasses, as what he is seeing is blurry. He is not at all worried about his brain forgetting to process vision (as the drs here were) because Luke opens his eyes so much to see. He recommended we put Luke on an inversion table with his eyes lower than his feet so his lids would open by gravity. This is something the neurodevelopmentalists on the Utah program have also suggested. We will certainly give it a try!

One thing...if you live here in the valley and are craving pizza, there is a fundraiser at Barro's pizza this Thursday, May 1st, for another little boy I have been following that is a near drown. You have to go to the Barro's at Power/Queen Creek, Val Vista/Ray, or Alma School/Germann. You can get more details at www.prayforsantana.org. I have emailed his mom, Lindsey, a few times back and forth, and actually found out about the place we went for stem cells thru her web site. They are thinking of also taking Santana for the stem cell therapy.

Thanks so much for the continued prayers and support! We appreciate it more than you could ever know. "Every highway of life descends into the valley now and then. And everyone must go through the tunnel of tribulation before they can travel on the high road of triumph." Believe!!

4 comments:

Anonymous said...

Glad to hear that Luke had a good visit with the eye doctor. How wonderful that he was able to spend so much time evaluating Luke.
Happpy to hear that Luke had a good week. We always look forward to reading about what Luke is up to and his story of the week. :)
We love you all!
Tammy and family

Anonymous said...

Thanks for the update Stacey. Give Lukey a hug for me!

Unknown said...

Hey Luke, it sounds like you've been working hard. We love hearing "Lukes story of the week." Maddie and I still play "this little piggy."

Keep up the great work.
Love, April

Anonymous said...

Hey Luke.
this is your cousin in law Cindy and husband mitch, We are happy to hear that you are riding horses for theropy. We have a few that u would LUV>
We luv u and glad that u have a awesome week.

Mitch, Cindy and family